New Knees a year later

20 Dec
2005

In February I linked to a column about a health writer who had had bilateral knee replacement surgery. A health writer gets new knees. This entry has (to date) received 24 comments. Today, in the NY Times, she tells us what happened since then. A Year With My New Knees: Much Pain but Much Gain

It’s been a year since my seriously arthritic knees were replaced by manufactured titanium ones. Many readers who recall the postoperative difficulties I wrote about last February have asked for an update. They want to know how I’m doing, and whether I would do it over again if I had to.

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A word of caution: as with any surgery, knee replacement is not always perfect even in the best hands. I have met several people with lingering problems, including one who experienced permanent nerve damage and another who must use a cane despite a year of physical therapy and reassurance from her surgeon that her new knee is “perfect.”

While they are a remarkably good imitation, titanium knees are not as versatile as natural healthy knees. Kneeling on them is not comfortable, even with a cushion, and they don’t bend as much as natural knees.

While a normal knee can bend to about 145 degrees, I can bend my left knee 120 degrees and my right 115 degrees.

I now have to garden sitting down. I can ride a bike for miles. Though my knees often hurt when I start out, they feel better after riding than before – no more postexercise icing and pain.

As with arthritic knees, my artificial ones get stiff when they remain in one position for long, so I still have to get up and move around often.

I have not tried tennis and, given my back problems, may never return to the court. I can run for a bus without pain and go up and down stairs like a spring chicken (which I’m not!).

In November, I walked through the Los Angeles Zoo and Griffith Park for nearly four hours without pain that day or the next.

Perhaps most exciting of all, after two years off the ice, I am skating again with no knee discomfort during or after.

I expect to be back on cross-country skis and snowshoes this winter.

With metal knees I have to put up with a personal body check before every flight, so I make sure to leave plenty of time at airports.

The bottom line? I’m still glad I chose to have both knees replaced at the same time. I doubt that I would have gone back for the second one after experiencing the first. I am also glad to have knees that permit me to walk for miles and stand on my feet for hours without pain.

As Paul Harvey would say – and now you know the rest of the story!

My analysis:

Knee replacement surgery is not magic. One does not immediately resume an active lifestyle. Patients should make the decision to consider knee replacement surgery only after very careful consideration. The ideal candidate is the patient whose quality of life has been greatly compromised because of their knee pain AND is highly motivated to go through the rehabilitation process. Rehab requires hard work. Thus, the patients who really benefit are those who start out in poor shape and are willing to “pay the price” in the gym to restore function.

As with all surgery, the patient should be willing to accept some risk. Anesthesia has risks. Knee replacement carries the risk of infection. One has a short term risk of blood clots. I am certain that I have left out some important other risks.

Thanks to Jane Brody for sharing her story!

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Related posts:

  1. A health writer gets new knees
  2. A patient care puzzle
  3. Pain control
  4. On knee osteoarthritis
  5. What I said about pain control

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66 Responses to New Knees a year later

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Linda Dahlberg

December 21st, 2005 at 12:40 pm

I too, am just about a year out of single knee replacement. It was not without complications. The pain was insurmountable for three wweeks. The PT, though necessary was grueling. I womplained of sever foot pain after falling out of bed on second post op dayu. No side rails and confused I wanted to get to thwe commode. My doctor and all hospital persoell chalked it up to anxiety. As a matter of fact, that theme was repeated all over the chart. The ortho said the foot was clinically negative and did not order said xray Rehab at home was as painful as any could be. I kept telling them all along that the foot was equal in pain severity as the knee.
Three months later ortho ordered a MRI and found two bone bruises and broken cuboid bone. So much for the anxious lady. I resent all the inuendos and certainly your observation re pain control is quite accurate.
I wanted to sue the hospital for the no side rails and th eortho for not listening to my plea. I was too tired and worn out to go through with it. Thanks Jane for all your articles

My advice for future replacement clints is to go tho a full=time rehavb unit wher ethey are specialists in pain control and Pt This past year was a nightmare, but I too think I will be able to do level XC skiing

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ann leary

January 21st, 2006 at 9:40 pm

I had both knees replaced in october of 2005; my orthopod had toldme that I had plenty of cartilege – he apparently hadnt wantedto spring for new scans. When I consulted with another surgeon, I was “bone to bone”. I realizethat taking up horsebackriding again in my fifties was knee-intensive. I just wasnt prepared for the real horrors involved in the surgery and what can happen in the best of hospitals.

There was a loud strike going on at the SF hospital where my surgeon did the procedures. The anesthesiologit tried 8 times to do the puncture that would allow the operation to be “local” – andwhen I woke up from general anethesia, both legs wrapped in coton wool and screaming with pain, my surgeon said “…if I had known you were on pain medication, I never would have done this procedure”. Huh? My pain meds were written in a zillion places, inclding his pre-op report to my primary care physician. I stayed two weeks in this hospital, filled with undeserved shame, vastly undermedicated by a “scab” staff who must have been told I was some kind of junkie. I cried and moaned so much I got movedto a private room. My “nurses” insulted and infantilized me, when they werent ignoring me, saying things like “..you’re a doctor, why dont youhave better pain tolerance?” (I didnt realize that if one is a health care professional, one must eschew pain meds. I would have appreciated a bullet to chew on.

I got little PT, little ice, had to beg for medicine. This is an agonizing operation, kids…dont let anyone fool you there.

I was discharged by the surgeon, who at least had the courtesy to apologize and say, by way of explanation, that he had been raised a Christian Scientist!

I wont sue anyone – it’s too time consuming and soul-killing, but I’m now paying out -of-pocket for alternative treatments like Feldenkrais and accupuncture to try to gain even a little range of motion. My knees are rather grotesquely swollen. I really get it that it’s up to me to do the hard hard work of recovering – I want to get back on my horse. I think I’m still reeling from all that happened to me – it was like a descent into hell, which even my spouse and medical profesional friends were helpless to prevent. I don’t know what the answer is, but if Western medicine continues to separate the medical from the emotional, we’re all in big trouble as we get older and have to undergo more and more procedures. At least my knees now have their own “passport” for going through medical detectors, courtesyof the company that manufactured my titanium implants.

And I agree – if I had done only one knee, I never would have found the courage to undergo tht sadistic situation again.

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shirley clare

January 27th, 2006 at 5:25 pm

I too had bilateral knee replacement the end of Oct. 05- just had my 3 month check-up- I think it has gone according to schedule altho I have had nothing or nobody to compare it too.
After ending up in ICU with cardio pulmonary arrest due to either an allergic reation or over medicated I did everything I was suppose to do.
I am driving no, doing stairs-better going up than down, shopping without a cane-still have trouble on a low toilet seat, get tired easily.
I am walking well altho have some scar tissue on my right knee that locks up every now and then and a pulled leg muscle on my left leg that stops the range of motion somewhat- I believe I am about 110 and 90 right now.
I am finally able to sleep on my side altho my knees feel like blocks of wood and when I lie on my stomach it feels like they “fall” forward??
I got through surgery out of the country, Xmas and a move so I think I probably did more than I was suppose to , however, the surgeon gave me a passing grade.
I wouldn’t recommend 2 knees 2 everybody-you have to be a pretty determined person in pretty good health to go through it-luckily I am both of these-I am 63 years old.
I would love to hear from anybody out there who has been through this recently- best regards -Shirley

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Kate Nelson

February 14th, 2006 at 8:49 pm

I had bilateral knee replacements in April, 05, and have been ill ever since. The knees work great but there’s a lot of pain and swelling. I seem to have developed a systemic or immune problem, with neuropathy that’s increasing, (all over my body)Burning Mouth Syndrome, burning knees, & fatigue. I have been tested by many doctors, who have no diagnosis ideas. I was healthy before the surgery, but now feel that the artificial joints are attacking me, somehow. Finally, the medication Lyrica (a nerve blocker) has given me some pain relief, even with the weird side-effects. I have an appointment to start with the Mayo Clinic, in Rochester MN, end of March, and am Not looking forward to the travel or the Mayo experience.
Even with all that’s happened and changed my life, I would still recommend bilateral, getting both knees replaced at one time! It’s a great way to get it all over with… to improve the knee pain. We’ll find out what’s wrong and I’ll be fine. I’m still glad I had the surgery!
Kate Nelson

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Suzanne Thompson

March 5th, 2006 at 10:14 am

After 10 years of “bone on bone” pain I finally got a great surgeon to replace both my knees – at 47 I was told for a long time that I was too young for surgery. I am nearing my 3 month anniversary and although I am walking better than ever I still have a great deal of pain at night and trouble sleeping. Ibuprofin gets me through the day but nights are hell. I am fast running out of pain medication and trying to work up the nerve to call my doctor to ask for more – I feel like such a wimp.

As for the bilateral choice – oh, yeah…I cannot imagine doing otherwise. People kept asking me why I decided to do both and frankly, I couldn’t have picked which knee to do first – it seemed easier to do the both at the same time. Which was a little simple-minded I suppose, considering I had no idea how painful it was going to be. Wimp that I am I might not have gone back for more if I had just one knee done!

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robyn

June 18th, 2006 at 9:29 pm

I am so happy I found this blog on Google! I have felt some and much of what has been shared. My surgery date for bilaterals was March 28th 2006 and I actually was in very little pain right out of surgery as my doctor at Lennox Hill shoots you up with all sorts of pain meds in the knee and had a been given so much pain meds morphine an oxycodon that my respiration was difficult. What I did not expect and can’t believe i didn’t get told was the pain in my muscles in my legs and unable to move at all without excrutiating pain in my muscles. I felt like James Caan in “Misery” and at the mercy of sometime very impatient nurses aids who had to be told to move my legs carefully to roll over for the bedpan and then replaced gently. So many times it was torturous to be moved and pain meds did not always cut it. I felt it has become such a common procedure that there is a bit of insensitivity to the patient’s pain issue. I am now in PT and it is hellish. I am still on pain meds twice a day and I don’t care if they don’t like it. Arthritis Tylenol does not help if I am going to PT. I am shocked at the fact my legs feel like robot legs bending them and only pray that I feel they become less like this. I am happy I had the surgery as reading the outcomes one year later I would love to ride a bike again, and do some of the sports I had to suspend for years. And lose weight I gained which is coming off as the pain meds do kill the appetite. I was lucky in that I did have DVT in small veins and it slowed down the agressivenss of the acute care facilityl. It was only when I pushed and cried about the pain in my calves did they provide a Dopler and then when I asked the technician to look under my legs which were on the table did the blood clots get discovered. My word of advice- you must be your own advocate and really articulate strongly when something is not right. Why so much pain, why the stiffness, and why cut back on narcotics which are pumped into you 24/7 every three hours including morphine patches like it was a candy shop and once you are released they think tylenol will suffice with limited pain meds. I am not a junkie but the other blogger does make a point that they feel you have to be tougb which we are to do both knees, but hey, this is no joke. I was not prepared properly and I had a awesome doctor world reknowned. I am writing a lettter to him for hopefully other patients to be more sensitive and prepare them. Also to train nursing staff better on handling bilateral legs. Wow this is great I needed to get this out and read your comments. thanks. and good healing to all of you!!

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E. T.

July 17th, 2006 at 5:52 pm

I appreciate all that I have read here. One year ago I had a single knee replacement. It still swells, aches and is so stiff and painful when I get up in the morning. It clangs when I walk…and I am getting more knockneed on the leg as time goes by. I have been assured all is well. If this is well I am dreading the next few years. Would I have the other one done in time…NEVER! I am lucky to have a husband I have been such a pain to him. I should have read your page before I had surgery. I take ultram everyday for my arthritis so I am glad I have it because if I didn’t take it for arthritis, I would need it for my knee. It keeps me going…thanks for listening to my moans and groans…

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miranda robinson

July 24th, 2006 at 3:30 pm

I am due for a bi lateral replacement in two days and abject terror is setting in. I have had very little input from the surgeon (too busy I think) and the fear for the ongoing pain and disability is growing. I am also told that I will have an epi dural and this is causing some anxitey as well.
Planning for the return home has me a bit baffeled and as my husband is very busy I think I might starve to death!

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knee replacement

July 30th, 2006 at 2:06 pm

you should not worry too much, knee replacement is a very successful surgery, it relieves the pain and restore the movement to your knees, and physiotherapy has a kee role to its success. Good Luck

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Star Stivers

August 7th, 2006 at 5:00 pm

I had a knee replacement a year ago. It swells, it gets very stiff and make it hard to walk up of down stairs, painfull all the time, and makes it hard to sleep at night, it still pops really bad. The pain is getting worse. The pain is not in the joint as before surgery. It is now all around the knee. Right after surgery my knee and leg swelled so bad they did a doppler to see if I had a blood clot. I had seveere itching on my knee. It got really red. I then got such a headache and was sick to my stomach the next day. I also ran a fever.
At first when they were going to do surgery they tried an epidural and it did not do the job. They finally had to put me out. I did not get morphine after my surgery. They gave me oxycotin. I was in the hospital 4 days. Two days after coming home went to emergency room with seveere headache and vomiting. They had no clue what caused it. I think it might have been the epidural. I had therapy about a week and a half after surgery. The therapist called the doctor to came over to therapy because my knee was so red and swollen. I was told I was allergic to the glue they had used to close my knee.
Xrays have been done quite a few times since surgery doctor says things look okay. I just got a bone scan done. I’ll get the results Aug 9.
My doctor gave me a perscription for Vicodin and Ultram and told me to use the ulternatingly. I only use the vicodin when I have to which has been more often lately. There have been time I have had to resort to a cane or crutches.
I been searching the net for answers. I did find that alleries to metal can cause these problems. I do have allergies to indoor outdoor type things. Something I really didn’t think about is I cannot wear types of Jewlrey. I was also told to be checked to see if I may be allergic to the cement glue they used.

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Paula Byers

August 10th, 2006 at 7:27 am

I am so glad to find this info. My bilateral was on 6/1/06. still a lot of swelling and paid – especially at the end of the day. BUT, I am glad i had both done – and that it is over. I know I could not have faced having the 2nd done if I had waited.
I was not prepared for the amount of pain- and my doctor is very ok with pain medication. I am still in PT three days a week and ride my own excersise bike 20 minutes each morning. My biggest complain is I have back problems… they say it is my gait. Just wish the swelling would do down – I think that is one reason for the pain. love to hear how many of your are doing so well after a year.

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Dama

December 1st, 2006 at 2:23 am

I had a knee replaced almost a year ago. Am glad I did it – I was only 51, but could barely take the dog for a walk beforehand. Luckily for me, I told the surgeon beforehand I’m allergic to metals like steel and chromium, so my implants have a ceramic hypoallergic coating.

It’s been a long haul, and the healing process hasn’t been linear and it isn’t finished. Did all the PT – some of it was painful. Despite my attempts to use a non-opiate (alternative to Vicodin/hydrocodone) painkiller for the first couple of months, the alternative made me horribly nauseated. As I expected, I became quite addicted to Vicodin (and I am NOT an addict of any kind), which previous experiences had shown also makes me irritable and depressed, and I had mild panic attacks as I was tapering off. Fortunately, my internist was ready for this, and helped me taper off using a very weak solution of Vicodin so that I could adjust and lower my dose very gradually.

Developed some “soft-tissue” issues at about 7 months post-surgery: bursitis, possibly from overdoing it on the rehab after my 12 weeks of physical therapy. My kneecap was not healing or tracking in quite the right position… Fortunately I am working again with a good, caring, competent physical therapist, who does ultrasound for the bursitis and performs massage and manipulation once a week to loosen up my patella and get it tracking properly. I still have a lot of clicking and clunking of my patellar prosthesis, but I was able to go rafting this past summer much freer of pain, and can now bicycle outdoors for brief periods… Still icing the knee pretty regularly, but much frequently overall, depending on the bursitis.

This is a good surgery, by and large, but people vary a great deal in their recoveries, and it can take up to a couple of years for some. I’m pretty fit and active, and working with a physical trainer twice a week to stay in shape despite the knee issues, but still it’s been extremely draining emotionally. TKA patients must be very proactive in their recoveries and insist on being taken seriously by the docs. I also found acupuncture, massage, and Feldenkrais helpfu during the first few months. Your PT can be one of your best advocates, and an invaluable source of support. Uncaring or unhelpful PTs or surgeons have no place in this process, as far as I’m concerned–my surgeon is excellent, does hundreds of these a year, and is compassionate besides. The nursing staff who cared for me in Spokane were reasonably good, if terribly overworked.

It takes a lot of energy and support to recover from knee replacement for some people, and you have to take charge of your own process. It pays do to a lot of research, because you’re likely to be turned loose by the surgeon and PT long before you’ve really recovered. Be aggressive, ask questions if things don’t seem right, and seek support .

Best of luck (and quick healing) to all…

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bettina devin

January 5th, 2007 at 3:34 am

Just finished reading all these entries. I’m a bit nauseous, probably from fear. I am 55, and had a single right knee done on Oct. 6, so in 2 days, will be at three months out. And oh yes, I agree with one blogger who wished they’d read all this BEFORE the surgery. I don’t think I would’ve proceeded with it, and would’ve continued wearing knee braces instead. I foolishly only focused on positive feedback I heard from previous patients of my surgeon, most of whom were in their 60’s and 70’s, and who relayed their experiences of being back to active, busy lives in 6 weeks’ time. (I realize now that being able to play a game of golf is not the same as working 7 days a week without stopping much to draw breath. I should’ve gotten on one of these sites, and read some of the negative comments, which I now see are easy to find.

It is somehow oddly comforting to know that other people have spent as much time in hell as I have. Some better, some worse. Yesterday was the first day in 3 months I remembered what being the positive, life-loving, happy and humorous person I have always been was like. Because my doctor (also a world-reknowned doc, Dr. Thomas Coon, who only does these supposedly “less invasive” procedures, and nothing else) ASSURED me I’d be back at my very active life (I am a VERY busy actress/singer/entertainer who, prior to the surgery, was driving back and forth from L.A. to northern Califonia twice a week) in 4-6 weeks, I was hideously unprepared mentally or fiscally for the real truth… that it will probably be A YEAR before I can resume my lifestyle. .. IF EVER. I was emphatic about telling him that my most lucrative income period is November/December, and that I’d planned my first trip in 8 years to Australia in January. He matter-of-factly said “No problem… you’ll be fine”. LIES… Obviously, I missed out on ALL of the work, and had to cancel my trip, losing $1000’s in the process. I too had frighteningly high-level pain for the first 5 weeks(8-10 on the pain scale), and was inexcusably under-medicated by him. Thank God I had the smarts to consult with my incredible pain specialist, Dr. Judy Silverman, at St. Mary’s in San Francisco, who step-by-step, built me an entire team (7 different medical professionals, including 2 p.t.’s, a pain therapist (I slid into a terrible depression from the pain and shock of the outcome and the realization that my career was literally stopped, so my phyziatrist consulted with her psycho-pharmacologist colleagues, and put me on Lexapro, and I then suffered through a month of horrific side effects, mostly completely debilitating nausea), and another surgeon, to whom I went for a second opinion, as I was afraid something had gone wrong with the surgery, since my pain was so out of control. Dr. Silverman put me on a Fentanyl patch (commonly given to cancer patients for pain), and then doubled it when it didn’t work adequately. I remain on that and take Percoset on top of it as needed (usually most days at around 4 PM) and large doses of Advil when needed, as well as anti-nausea medication. (At my 6 week post appointment with Dr. Coon, he was clearly more upset that I’d broken his success record when he explained angrily, “Percoset! Why, I’ve done 1000’s of these surgeries and NEVER had a patient on Percoset before!” That’s when I decided NEVER to return to him, and to see the other doc in San Fran. (In fact, the day after my surgery, he and his P.A. were bragging that they’d done 10 of these surgeries the day of my surgery and that mine only took 29 minutes!!!!!!!!!!!!! Jane Brody got it right when she mentioned the greed factor!)

Since we’re venting here, I must say (as did Jane Brody and another contributor) that I have never cried as much in my entire life. And I too thank God I have the prince of a boyfriend I have, and a blessed circle of dear, supportive friends. Solitary stoicism is not my style, and does me no good. I reach out for friends, and their caring, listening, and advice helps me!

My wonderful p.t.’s (Dennis Morgan and Margaret Anderson in Tiburon, CA) tell me I am ok mechanically, but that my high pain quotient will most likely be responsible for a year of healing… a far cry from the 4-6 week promise. I am told I am doing ok with the bending, but not terrifically (off 10 degrees on the straightening, though the second opinion did not feel I needed an MUA… thank the Lord!) I am still walking with a cane, and walk downstairs with difficulty… and can’t even walk upstairs yet without hoisting myself on the banister. (Oh yeah.. I forgot to mention that I had a 10″ paraspinous muscle removed from the left side of my back 3 years ago, thereby leaving me quite comprimised. The months of walking with the hopalong gait angered my poor back, and so I revisited my back surgeon, worried that perhaps my tumor was reappearing. Dr. Coon never warned me about THAT either, although he knew my history.)

Since my job demands that I be able to walk elegantly, move quickly, and sometimes support unwieldy head pieces, I am still worried that I may never fully return to my career. I am trying (and finally able) to be more optimistic and positive, to help the seratonin do its job of lessening the pain so I can better push past it, and HEAL!!!!!!!!!

I’m glad my boyfriend found this blog for me, and hope to hear some encouraging words from out there.

Oh, one last thing… it has been the experience of my physical therapists, and now I myself have witnessed the same, that fit, disciplined patients (like myself) in their 50’s have had the worst experiences re: healing from this procedure. The people I’ve spoken to and met in their 60’s, 70’s, and even 80’s, who’ve not necessarily been in good shape, have had far better results, and lightning fast recoveries. It is the opinion of my p.t. that perhaps younger people form scar tissue TOO fast, thus creating adheasion problems, stalling return to mobility. Something to consider if youu are in your 50’s and reading this…

OK… I must be feeling better as it is after 1 AM, and I am still typing away… I am grateful to have this much energy, since my favorite spot has been bed for FAR too long.

Good luck to all, and do heed the advice of many of the above who preach strong self-advocacy. Demand thoroughness, ask questions, and find OTHER medical people who give a damn if your surgeon and his staff don’t. Perhaps connect with a phyziatrist BEFORE you go in for this surgery, and warn them you may need their help if you are not properly medicated or treated. And be prepared with proper help at home.

Will love to hear from you out there.

Thanks for letting me bend your eyes.

Bettina

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Carolyn Damon

January 14th, 2007 at 2:01 pm

Well, I am among the unusual I guess. I had left knee replacement done in 2000. It is perfect, after some considerable anguish. That knee was done in Ma. by a doctor who does hundreds of knee and hip replacements a year. After retiring and moving to Maine I had my right knee done in October, 2003. It seemed to go well. I shouldn’t have been so confident. Last fall I got out of my car at the local medical center (I was seeing the surgeon who had done my rotator cuff surgery), and I had to ask a woman in the parking lot to send someone out with a wheelchair, as I did not have use of my right leg at all. The knee simply didn’t want to hold me up. My physician took an X-ray and said the knee was fine, and to go home and elevate it and ice it—what???? Seems like that is all I did before my knee replacement which I thought had gone well. Since then when I move my knee to the side to get out of bed in the morning it feels like the joint was separating but I was able to walk o.k. On Mon. Jan. 8, the knee once again became unstable and so I made an appointment with the surgeon who replaced the knee. He again did x-rays of both of the knees, and once again said everything was fine, but if that continued to happen I should elevate the knee and ice it. The knee got better for four days and then on Sat. night, I was sitting on my sofa and talking on the phone. I went to stand up and I had so much pain in the right knee I couldn’t put weight on it. I almost cannot believe this situation. I called a friend who lives in N.H. who is a retired physical therapist and she of course said get to another physician right away, and that I should use crutches and not the cane I was told to use, in order to remove all weight off the knee temporarily. I can see that life is full of uncertainties but this is kind of ridiculous to have this situation after three years . I noticed someone talked about a doctor not wanting to properly medicate after knee replacement. Well, the surgeon who did my knee only gave, Davron and Ultram and a muscle relaxant. The pain was sooo bad that I thought I would pull my hair out. Honestly, what is wrong with these characters. I could write a book about my experience, especially after being wheeled into recovery and after telling the nurse prior to surgery that I could not take any narcotic meds without taking Vistaril or the generic of it to get rid of nausea, what did they do, gave me morphine (and I told them that did not work on me)without the Vistaril, and then came nausea. I heard the doctor yelling that he wouldn’t give me the drugs the ways I needed them. What a bleeping horror show it was. Then when they did get me medicated, they over medicated and I don’t remember the next 3 days in the hospital. I only remember being transferred to rehab. Talk about treating patients like a piece of meat. It was demoralizing. Now I will never return to that surgeon, I will ask my physician for a referral. I don’t even know if a problem like this can be fixed!!!! Think twice before this surgery, and make sure the surgeon has done many hundreds of replacements. The doctor who did my left knee had. That seems to be the difference.

Carolyn

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ARLENE

February 17th, 2007 at 10:30 pm

I am reading this blog because I was getting desperate. I am 8 months out on a right knee replacement and have been haveing nothing but problems and pain. So far 3 differnent doctors keep telling me the knee surgery was fine but I can hardly walk. I am having so much problem with the tendons and muscles at my ankle and calf and underneath and around my knee and also some of the nerves in my let. I was hoping that someone might have the same kind of problems that they found a solution for. I feel at this point that is I had it to do over again. I would not. I also feel like this pain is never going to end. I just do not know what to do at this point. I went thru all the therapy and it only made the problem worse. Hope someone out there has a answer to two. Arlene

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Helen

February 21st, 2007 at 10:58 am

I too, had BTKR,back in 2005. The recovery time is between 6-12 months. My ortho. didn’t prepare me for this long & painful recovery. In July 2006, tripped on mat in gym(going for my last time at p/t) fell on both tkr, had revision surgery, which was worse than the btkr. My knee is still swollen & painful, can’t drive for long periods of time, & sleep is almost non existent for me.

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Arlene

February 23rd, 2007 at 1:55 pm

Helen, I really gringed at the thought of your falling. That was a bummer I cannot invision falling and creating more problem with my knee. I understand your frustration I am 10 months out and not much relief in sight. I do not want to get addicted to pain medications but I am thinking about it. I am having major problems with the tendons and muscles on my calf. I went to the Doc yesterday and he said . “well maybe this is the best we can get” I just looked at him and said “I don’t think so. So now he is giving me a series of shots. Get this A mixture of water , sugar and salt with pain killer. I guess if it works I will take it. I got it yesterday and today my tendon and muscles in my calf are killing me. He claims it has to get worse to get better. We shall see. Arlene

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Don Berger

March 6th, 2007 at 4:16 pm

I had bilateral knee surgery on January 30th 2007. I am 5 weeks out of surgery as of today. I was told I would be home on the 4th or 5th day but did not get home until 3 weeks after the surgery. I got very sick from what they now determine was the medication, femoral block and morphine that they gave me. I could not even get out of bed for 6 days. After 4 days, they transferred me to another hospital’s rehab center where I was still sick for 2 more days before they figured out what was making me sick. It was all a blur to me. I can remember very little of what happened I was so sick and drugged up.

I have been home now for 2 weeks using a walker and going to PT 3 times a week. I spend about 1 hour, two times each day doing the exercieses they have recommended for my improvement. As of yesterday I was bending my left knee only about 78 degrees and my right leg about 85 degrees. My surgeon has told me that if I cannot bend them both at least 90 degrees by March 12, he wants me to go back in the hospital for a “manilulation” treatment that he says will take about 5 minutes where they will bend both knees to 130 degrees. I will have to be put asleep to have this done and he admitted there will be discomfort when I recover from the anesthetic. He says that because I was so sick for 6 days after surgery, that scar tissue may have built up in both knees that is preventing them from bending to 90 degrees plus. He said that by manipulating them to 130 degrees that it will break up that scar tissue and allow the legs to bend. Has anyone been throught this “manipulation” and does it work?
I have to admit that I am feeling stronger and having less pain. It is at least bearable.

I do not think I will regret having both knees done at the same time, but I would never want to do it again. When I was at the hospital rehab center for over two weeks, they told me that many surgeon will not allow there patients to have both knees done at the same time. I am confident that in a few months I will not regret having both knees done at the same time.

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Kathi in Alaska

March 13th, 2007 at 12:07 pm

Hi. Happy I found this site. It’s nice to have a place to hear real accounts of BTKR. I’m headed to India to have my knees replaced by Dr. Marya. Everything I’ve read points to him being one of the top TKR surgeons. I’m a massage therapist by profession and a tai chi and meditation instructor also. I’m really hoping that I’m prepared for what’s comming. I’m pretty good at pain management. (Suffering = pain x resistance.) I don’t know what I’d do if I didn’t know breathing techniques. I’m bone on bone and took a fall Jan. 20th that trashed my right knee and pulled every muscle in my right leg. But I’m back to walking without crutches (boy, I hate crutches!). I’m not looking forward to surgery. I’m even less looking forward to the plane ride over and back! But I’m trying to stay positive. Fortunately I have my boyfriend going with me. Don’t know what I’d do without him. Anyone out there with experience with Dr. Marya & India, please write. Especially with BTKR which is what I’m having. Thanks.

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Don Berger

March 21st, 2007 at 5:42 pm

Well, I am now 7 weeks out of surgery. No, I did not have to go through the “manipulation” procedure my surgeon had been thinking about if my knees did not bend to at least 90 degrees by March 12. Thanks to my PT, we achieved getting both knees to bend to 90 degrees just before I saw my surgeon. He now thinks I can get the rest of the way with additional PT, so he has scheduled me to go all the way through April. And it is working. Today, we got my right leg to 98 degrees and my left leg to 95 degrees. We are going for 100 on Friday.
My pain has eased considerably and I now only take 1-4 Darvisets a day. I also have a recumbant exercycle that my PT recommended I use to move my legs back and forth. Up until this past weekend I could only go one fourth to one half a revolution, but on Saturday made it all away around, be it not without pain. However, I now can go up to a mile on this recumant exercycle and I think it will really make a difference if I keep doing it 20 minutes a day. I am very optimistic that we will get to 120 degree bends by the time my PT ends in April.
My knees are still swollen as expected and I know this will take more time, but I think the overall outcome will be fine, particularly in light of how I started out with my after surgery problems. Never give up, but there is no doubt that a good surgeon and good PT is necessary to get a great outcome.

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Lu Bright

March 24th, 2007 at 12:34 am

Lu Bright
brightsantiqueworld@hotmail.com
Hi, I hope there is someone out there that can give us some advice, or direction.
This blog seems to be the only site that posts both the good and bad sides to knee replacement.
My mother had a knee replacement app. 5 years ago. Both knees have arthritis and are bone to bone. She did everything the doctor and therapist asked her to do.
Two years after her surgery the knee was still swollen, twice its size and making a clicking sound.
After insisting she go back to the surgeon and have it checked out, the surgeon insisted that the problem was scar tissue. The surgeon then performed surgery to remove scar tissue.
She has visited two other surgeons. One surgeon said the replacement was fine.
The other surgeon took fluid off the knee and said it was bloody. He also told her that he would need to do exploratory surgery to be sure, but he thought the replacement was loose. ( found through x-rays ) He said he would have used a different replacement, that the replacement she has is the wrong one for her particular arthritis.
She canceled the surgery, this was a year and a half after the scar tissue removal.
Today, the knee is still swollen, clicking and she is having back problems.
She is afraid to go to another surgeon and does not want another replacement. She hopes to find someone who can “fix” the replacement she has.
She and my father are both retired and dreamed of traveling, but the knee is turning her into a shut in.
Thanks for the help and the advice is appreciated.

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Susan

May 6th, 2007 at 5:52 pm

My cousin had scar tissue surgically broken after an ACLU & it worked: there is a leg bending piece of equipment that goes with the process.

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Susan

May 6th, 2007 at 6:30 pm

Does anyone have any feedback on the new Zimmer Knee vs. Johnson & Johnson? The new Zimmer is suppose to have a greater range of motion ( 155 degrees of bend ) however maybe Johnson & Johnson has the ability to betterreplace the plastic rotation platform? I am 58 YO. Thank you.

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jane

May 26th, 2007 at 6:41 pm

Help, I had bilateral knee surgery on 9/17/06. Did everything I was suppose to . They informed me that epidural would be best and the least problems. well right after surgery I came out with peroneal knee palsey on my right knee. Had no feeling in my foot up to my knee. could not lift up my foot so a special foot drop brace was made. extensive rehab for a week after surgery, electrodes on the foot and leg to stimulate the nerve again. Asked docter what this was from, he informed me my nerve stretched. now remember I never had this problem before surgery. I researched and found out it most likely was from the anestegiologist from compressing my knee either too long or postioned me wrong. I’m finally getting some feeling back. still numb on the top of my foot and I cannot lift my foot as well as my other one. walk on and off with a cane. Has anyone ever incurred this after knee surgery. I know it is not too common. Was never told of any risks. I’m wondering if I should sue. I just want to be normal and walk and run and smell the flowers if you know what I mean. It has been a very painful and frustrating journey. thank you for your input, feel all alone on this problem and would appreciate any feed back. thanks and God Bless

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Linda

July 6th, 2007 at 9:59 pm

My husband’s operation was May 29, 2007, 5 weeks out, right knee replaced. We were somewhat prepared for the difficulties and pain since he had tripled by-pass last June and a very bad right ankle operation two years ago. I really feel very bad for many who have written here, so many have had poor Docs, poor care, and misinformation. If you have this operation be sure you have an advocate with you at the hospital from 8:00 AM unitl 10:00 PM. I made sure fresh ice was on his knee at all times. I also made sure his pain meds were available ASAP. We had great care but nurses are human and have many people to take care of and my husband was in no shape to ask for anything. At 5 weeks out we still ice several times a day and I try to make sure he has ice on it all night. Ice is your friend. Yes, everyone should know that night can be very difficult depending on the days activiites., The pain is greater at night and it is hard to get comfortable. But being the wife I know before the operation he was up at 2:00 AM and unable to sleep because the pain of his real knee was very very bad, and we knowthe pain of this new knee will get better over time. We do have a question does anyone know why the knee is warm all the time?
I can only say that I pray you all get better.

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Lori

September 21st, 2007 at 1:12 pm

I want to know about knee replacement. I wonder I can back to sports – Track and karate. I do not decide yet. I think about but I delay it until I get old. I use 2 different painkiller medicines – almost rest of my life. I try delay my arthritis in knee instead of knee replacement. I am only 42 years old. I prefer wait until 60 or 70 years old. My surgoen said my knee is very bad and need knee replacement.
Please let me know. Thanks!

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Carole

October 22nd, 2007 at 10:52 am

This is a reply to Lori. I am 70! I was told I needed both knees done. I have seen healthy younger people have knee surgery and suffer through it. I am not doing it. I am holding on as best I can. I feel once you have it done – there are so many other things that come up and can be detrimental to your health. I have changed my lifestyle to accomodate my knees. I have had hip replacement and I do not want to go through anymore surgeries, as I had a staph infection with that surgery!!!! Carole

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Carole

October 22nd, 2007 at 10:54 am

I do want to add to my previous comment…that the Dr I went to seems to tell everyone that they need knee surgery! He doesn’t try to help them with the pain and see if the surgery can be put off. He just want to do that surgery!!

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Dana

October 25th, 2007 at 9:44 am

After reading what everyone has and is going through it makes my conviction even stronger to have the replacements. Do the homework on the doc and be sure to make sure that there will be proper pain meds available after. one way to help with that is to get in with a pain clinic before the surgery. I am 51 and have had my 2nd set of bi-lateral knees this past July. It was 13 years ago that I had the first replacements and that was after fighting for them because of my age. When you cannot walk, function, live like a human being something has to be done. Back then and still today I am refused treatment by many Dr.s because I ruin their stats. I am not fixable and never will be. That doesn’t mean that I don’t have the right to be treated. I am on a fentenyl patch and get the pain meds I need from the pain clinic. I have to go every month to the Pain Doc to get the scripts, but it is worth it to make sure that I have the relief that we all need. If my pain level goes down I take less and I have had to detox my system over the years to get off them. But, since I do not have an addictive body chemistry, I can get off them for periods of time. Some people are biologically unable to stop the pain meds and that is what many of the orthopods seem to think everyone that has pain is. They have to learn. If they start with that nonsense…go to someone else!!!! i have been lucky in some ways because of the many surgies I have had, but both my knee caps broke during the 1st go round and now after going into my 4th month on the new implants I am having tremendous grinding on one knee and cannot seem to find any answers as to why. If it wasn’t so painful it could be ignored. I have also found that now my back is shot and the more pt I do the worse my back gets. The catch 22 is the worst of it all and what is lacking in this part of our health system are people, therapists, to work with the doc’s to help people understand what they have to expect after the surgeries. Not everyone has the same experience but there are so many similarities. My first knee surgery was back before orthoscopic so I have road maps of scars all over my knees. If your knees are warm, they are inflamed and you need to ice them and work with your pt. If you don’t get the treatment you want, the doc’s are not Gods. Find someone else. They don’t like to work on someone else’s work but they are out there. I also had both my done at the same time and would always insist on that. Knowing that the other one has to be done was horrific for me and messed up my body because of the compensation that happend while rehabing one and 6 months later having the other one done. If you are willing to slow your life down a bit, and I have a very difficult time doing that, and take the time for the good and bad days it makes no difference how young you are. I say this as if I have no problems and each day is just wonderful….NOT!!!!! But being able to write it out to people who get it helps.

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in47 » Blog Archive » Comment on New Knees a year later by Dana

October 26th, 2007 at 11:08 am

[...] all the details here [...]

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Elisa

October 26th, 2007 at 12:25 pm

I had my rt knee replacement on September 5th. And at some point, my doctor says I may/will need the left done, too. At this point, I cannot imagine going through this pain again.

My range of motion is 85-100 depending upon the day. My surgeon has directed me to get to no less than 115 by Dec. 4. My PT gets on me to excercise more…can’t figure out how do so during my work day (as an outside sales rep).

Therapy is agony for me. Literally…I sob all the way through it. I am taking darvocet at night, celebrex for the arthritus in my other knee and back, tramadol for daily pain management and an occasional vicodin during the day if I am in absolute misery during my work day.

I can’t sleep at night because of all of these phantom pains throughout my left leg. Not my knee…shin, calves, above the knee…weird stuff. My surgeon’s answer…I told you it would be a full three months before you would be better.

My attitude is that although I was bone on bone and had lousy quality of life……I am still not sure it was worth it. Consider it carefully. As much as it hurts right after the surgery….the aftermath is th e hardest thing you will ever do. FYI – I am 55.

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susie

November 26th, 2007 at 6:12 pm

i can’t believe that now i find this blog … i am 9 and a half weeks out from TKR on the right. extension still 15 degrees shy, and flexion at 100 after pt. Things seemed to go pretty smoothly at first, except for the pain of course, until returning to work part-time as a manager of a fairly large coffee house/restaurant. No one told me before-hand, that the younger you are the harder it sometimes is …i am no stranger to rehab/pt having gone thru 6 other knee surgeries plus an internal fixation of my right femur years ago …so the pain i was prepared for … the time – well not soo much. Next week i have a MUA scheduled and am dreading a return to the hospital, let alone the procedure . i am 49 year old female, and feel like life is suddenly not quite so sweet. No magic bullet, no quick answers ….. trying to find some reason for the slow recovery, and to be able to deal with it in a humorous, content way … but my god …. this is awful. Thanks everyone for helping to not feel so alone ….

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Angel

November 27th, 2007 at 12:26 pm

Hi;
I just found this site a little while ago. I had a TKR(total knee replacement) on Oct. 22, 07 and it has been horrible so far. But, before I go on let me catch you up on what started this mess to start with.
In March of this year I went in for a PKR(partial knee replacement) due to severe osteoarthtitis. In 8 weeks I had to go back in for a revision, the femural component had broken loose. Five days out of the revision, the spacer shot out and lodged into the medial side of my knee. I decided that I could not trust the OS that had done the first 2 surgeries and I went on the prowl looking for another surgeon.
My husband went in to have a 5 vessel heart by-pass and the caroited and had a massive stroke during surgery. This was on June 28 07, so my hunt for a new surgeon had to be put on hold until I knew that my husband was going to be ok. He was doing so well in out patient PT, I resumed my hunt for a new OS. I found him and I am so happy I did.
After a series of tests and xrays, he told me that my knee was so traumatized the only thing he could do was a TKR. I had the surgery on Oct. 22, 07 and I am not a happy camper.
He failed to mention that he did not control pain post op, and sent me home with hydroco 5/500s. I was in horrible pain for 2 weeks until I could get in to see a pain management doctor. Before I left his office I was finally having releif from this horrble pain.
I now have 67 flex and my extension is fading very fast. I had a fall on Thanksgiving day and now, I get to start all over. He is giving me 3 weeks and if I don’t have the extension back he is going to put me in a spring loaded brace to force extension.
After I get that dreaded extension back I go back in the hospital for a MUA. Had I known what I was looking at by having this surgery, I would never had had the first one almost a year ago. This knee has taken my life over and right now I don’t see the light at the end coming my way. I have svere pain all in my leg all the way to my foot. My pain management doctor told me that he may have to do surgery to help me out with that. Scares me to death to have more surgery.
I hope you all have a wonderful holiday and hopefully more painless days.

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Stoney

December 17th, 2007 at 7:55 pm

As many others have stated, I wish I had seen this before I had my knee replaced. I am almost 11 weeks post replacement of my right knee, and I am still waiting to be glad that I did it. I am a nurse and did enough research to know what the procedure was but not enough to scare me from doing it. My ortho, who I feel is very competent and has done many procedures like mine, refused to both knees at the same time. He said that the risk of serious complications went way up when doing both, and he had only done both for two patients who had insisted, so I just had one done and doubt that I’ll ever have the second one unless my recovery has a dramatic turn-around in the next few months. My leg feels so weird, it clicks and the patella “floats” and stairs are murder and my house has four levels, but I can avoid the basement and bonus room. I had PT daily for six weeks starting with the day of surgery, and it went well from the outside looking in-I achieved flexion of 120 degrees and extension of 0, but that varies. I continue to do my exercises and ride a recumbent bike and can get around without a cane, but my gait is problematic and even though I can bend my leg, I walk stiff legged. D I try to bend it, but somehow it doesn’t translate. Driving is really uncomfortable, too. In therapy, I was told that I was trying to be too much in control and that I was a perfectionist and that was the problem. I have a high pain tolerance and didn’t have the femoral block and discontinued the pain pump for oral meds, but I am still on them. They run out tomorrow and I’m not getting anymore. I’ll go back to Aleve or Tylenol. Again. It is a weird “pain” if that is what you want to call it, and I get these strange twitches and jumps in my leg-maybe nerves regenerating? Someone mentioned a robot leg and maybe that is a better discription-I have lots of nerve damage on the surface with loss of sensation, and the knee area feels heavy and stiff. The scar feels like it has to be broken free every time I stand up, and it stings something fierce. Everytime I sit, it is like learning to walk again for a few minutes and when I get out of bed-this sounds really odd, I know, it feels like my right won’t reach the floor-but it does. I just hate that I did it-it has consumed my life and I feel like things will never be normal again. I do have a supportive husband and family or else I’d have gone totally nuts!

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jim

January 14th, 2008 at 9:34 am

is there anyone who has had a good experience with a TKR ??? i have been told i meed my left kneee done im soooooooo scared after reading the blog i cant take pain meds they make me so ill ……..

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susie

February 17th, 2008 at 1:05 pm

… particulary to Stoney 2 posts ago … the floating feeling will get better. i’ve been told by pt that that is coomon as nerve endings are destroyed that enable your brain, to know where your knee is in relation to the ground and where exactly to place your foot in relation to everything else …. i’m 6 months out now from my right TKR and that is finally improving, though the slightest thing can wack that out agin : i.e. head cold, allergies, etc… the body is constantly adapting it seems. twitches & jumps of surrronding muscles & nerves are very common also. that has diminsihed as well. i really admire your devotion to pt and can honestly relate to the driving, robot-like sensations ! it does consume ones life, and i really should check these posts more, as there seems to be quite alot of folks out there suffering with similair storyies. i’m currently feeling like i’m dropping the ball some how. in not pursuing a second opinion before the year anniversary mark that my surgeon wants to wait for ….. it is a life changing experience .

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judie

March 17th, 2008 at 5:39 pm

I had a right TKR June 2007. I am still having a lot of pain, swelling and stiffness. I went to PT for six months. I was told by my Dr. that I would eventually have to have the left knee done. I never intend to do that. I am extremely disappointed in my recovery. I have just as much pain in both of my knees and maybe even a little more in the one that was replaced. I use ice frequently. I use pain meds sparingly.I just put up with the pain but it has changed my life so much. I just want to stay home and ice my knees . I never sleep the whole night through because if I move a certain way my leg wakes me up from the pain. I had a surgeon who has a lot of experience and he told me after six months I would feel a lot better. Then at six months he told me it would be a year. I am waiting for that magic year time period but I am not going to hold my breath. I too, wish I had read all of these blogs before I went ahead with my surgery.
My room mate recovered from the knee replacement just fine but she developed a blood clot while in the hospital and she is still dealing with that. Also, something happened to her foot and she had to go to p.t. for that and is still going. I don’t know which is worse. I hope to see some happy stories on here at some point. I will keep checking back. I wish I could tell a happy story. Maybe in 3 months when my “year” is up? I can only hope.

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rb

April 7th, 2008 at 4:53 am

I received some very bad news from my knee specialist — I have to have total knee replacement. This is no surprise to me because I have known for quite awhile that the arthritic damage in my knee was going to lead to this. In 1992 I had ACL reconstruction but the damage to the cartilage caused a constant deterioration that couldn’t be stopped.

I’m a 52 year old male.

One thing I have noticed is that there doesn’t seem to be anywhere to get some objective consumer information on the types of artificial knees – sort of like a Consumer Reports. I have talked to two doctors, and of course they both think the knee they use is the best. I asked them if they have some objective evaluations – but they said they aren’t aware of any. Sounds like B.S. to me!

The other thing that is most irritating is that the replacement surgeon I talked to takes a very cavalier attitude about things. He doesn’t want to spend the time to tell me what I can expect post-op, and his nurse isn’t much better. Basically their attitude seems to be: “let’s get your surgery done and worry about what happens when it happens”.

Now that attitude might be find and dandy for them because they don’t have to live with the pain and other consequences to the lifestyle. Every time I talk to them I feel like I’m talking to a used car salesman.

They didn’t even tell me that I probably couldn’t drive for 6 weeks. Wouldn’t I want to know that to make sure somebody in my family could? I haven’t been able to get any other useful information about what other inconveniences I will have – like for instance will I lose my job because I can’t work (fortunately I have a desk job). It seems that unless I can think of a very specific question, I will get no other information.

Oh, yeah – they never talk about pain.

I was an avid tennis player before my knee started to hurt too much, so one of my questions is when or if I could ever play again. I get evasive answers that don’t make me feel comfortable.

This blog has definitely convinced me that more research on my part is necessary, but I’m not sure where to get good information.

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susie

April 8th, 2008 at 11:35 pm

rb- be sure and check out kneeguru.com – buckets of info & nice resource !
good luck …..

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Cindi

April 13th, 2008 at 8:21 pm

I had a TKR last April. Seems to be working great. A little tender around the knee cap at times is all. I have been working out with an elliptical trainer and some regular walking. Will start riding the bike soon. My hospital treated me great, nurses were great. Pain was tolerable with regular doses of Vicadin and Ibuprofen. Take every 4 hours like the doc tells you otherwise it will become very painful. Pt was great. The first week they came to my house because I couldn’t drive myself as my husband was working. 2nd week I got rides. Pt was down stairs, now if that isn’t therapy! They treated me excellent and got me going great! I had x-rays 6 months later and said they were beautiful and will go in for 1 year check!

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Betsy Myers

April 15th, 2008 at 2:46 pm

I am 73 and about to have a total knee replacement on rt knee. I had total on left knee 7 years ago. Yes, the pain is terible and at one point I professed that I would not do it again but here I am doing it. Reading the blogs is a scary thing though, seems more trouble than good things. My left knee has been good for 7 years and hopefully this one will be good that long. Using a new dr. and new knee so I am keeping my fingers crossed. I know all the good and the bad but still choose it so I can only hope and pray.

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Mary

April 20th, 2008 at 3:38 pm

I had a bilateral TKR on Jan 8 , this year and have to say that I am optimistic that the soreness around my knees and slight swelling will EVENTUALLY subside .
I still take Ibuprofen a few times a day , walk at least 1 mile in my neighborhood and try to use a recumbent bike 2-3 times a week.
My main discomfort is getting up and down from seated position and stairs.
I know if I had not had the surgery , my discomfort would be PAIN .
I get impatient and then realize that the days ahead will be better.
I am 70 yr. old female , retired RN and love gardening and my grandkids.
I’m hoping for many good years enjoying both !

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Randy McGraw

April 26th, 2008 at 8:47 pm

I had tkr on December 12. I was home and walking without a cane for Christmas. PT continues to go well despite a couple of setbacks. I am in so much less pain than before that I can’t wait to have the other one done on June 13–six months apart. My Surgeon would not do both at the same time and I can see why. My biggest problem has been doing the PT and exercises due to my other knee being in such bad shape. I walk with no limp and very litle pain. I took pain meds for the first six weeks but now take an anti-inflamatory mostly becasue of the knee that still needs to be fixed. I know that some people do not have as good a time as I but wanted to share my experience so that two sides of the story are told. I am 57–too damn fat–but the parent of a 13 and a 7 year old so I have to be able to walk and bike and run again. For me, it is giving me a normal life back and despite all the fear and trepidation and the horror stories I had heard, my experience has been a positive one. I do believe that the surgeon is a key part of this process so be sure you have a good one.

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judie

June 15th, 2008 at 12:25 pm

I went in for my one year check up and was told that everything looked fine on
the xrays. I told the Dr. I still had a hard time getting up and still had a “warm” knee along with swelling and pain. I had a Dr. who was substituting as my Dr. was called out. she said I would not get much more movement out of my leg after a year. Stretching it anymore at this point would not get me anywhere. I feel like the fact that my other knee is also giving me a lot of pain has deterred my progress. Maybe it is a good idea to get them both done at the same time. I intend to put up with the pain in my other knee for as long as I can because I just can’t imagine at this time anyway, wanting to go through the past year AGAIN!

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Diane

June 16th, 2008 at 9:00 pm

On May 19 I had Bilateral Knee replacement. Today I am 4 weeks out of surgery. I was in hospital for 3 days and then inpatient rehab for 7. I only had terrible pain 1 morning. I’m still going to outpatient pt and at this time have 105degrees in left and 103 in right knee. I don’t use a cane. My incisions are still warm to the touch, but are looking good probably because of using vitamin E oil 2-3 times per day. I ride the recumbent bike 3-4 times per day for 5-8 minutes per time. I continue to do the exercises set up by the rehab therapists. I don’t have alot of pain except in my lower back, which seems odd. I take very little pain medicine except for the back pain. As of today I’m totally happy with the decision to have knee replacement. I’m 59 years old and had spent the past year preparing for surgery by working out with a trainer 2 times per week to strengthen my legs and arms. I am hopeful that I will achieve more bend in my knees and eventually be able to kneel on my knees. It is hard to remember that I’m still only 4 weeks out of surgery. I’ve read so many negative stories. I’m very grateful not to have had problems and am hopeful that my positive experiences continue.

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Barbara

June 21st, 2008 at 6:43 pm

Had my left knee replacement done March 5, 2008, about 3 and a half months ago.
This has been a frustrating experience for sure. I think the hardest thing is never knowing what is normal and what is not. I have done a lot of worrying and agonizing. Though I don’t have terrible pain, I never feel very comfortable. It’s hard to explain to anyone who hasn’t been here. I am continually restless and have so little energy. I have very little stamina. And Im so tired of people giving comment when they should really just keep it to themselves. I’m 58 years old.

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Marianne

June 25th, 2008 at 6:25 pm

Getting ready for a RTKR in mid July. Have read much and there are definite pros and cons. Overall, sounds like the first (at least) 6 months can be VERY difficult, but down the road things are improved. I am early 40s and can’t imagine continuing like this. Have had numerous scopes (trauma followed by development of OA) and we are at this point of no return. Scared YES – Scared of the procedure and the pain (although I have high pain tolerance) but scared if I don’t do this that I will end up a couch potato and miss out on life. Enjoyed reading the positives and to all those still in pain – my hopes for health go out to you.

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Mary

July 14th, 2008 at 8:50 pm

It is now 6 mos. post op BLKR and I have to say that my knees are still a little stiff and my hanstrings a little tight , but went to the Dr. and he said all was normal .
I went to Ireland 4 mos post op and could NEVER have made the trip and did the walking and climbing that I did , if i had not had the surgery .
Life gives us opportunities and we need to get all the info we can , make a good call for ourselves and do all we need to do to have a good outcome .
I credit a wonderful DR. Wonderful support from family and friends and a strong determination to get well .
Looking forward to feeling even better at 1 yr post op.

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Fred

November 26th, 2008 at 9:41 pm

Well hello, I am a 49 yr old male who has had both knees done separately about 4 months apart. The first surgery went well I was told, and I agree, however I must admit that the general anasthetic in combo with the other pain killers left me in the twilight zone. I was and am very happy that this was done. Altho in BC we have excellent care and assistance, there are many things, questions, events that I was not prepared for. ie: I (nor the surgeon)knew how much pain meds I would require. So the Fri surgery and no Drs visit didnt go well. I asked for more but wasnt allowed more until the surgeon saw me after the weekend. That was a very long weekend. Finally after a new nurse came on shift Mon evening they were able to get me more meds. I was in a room with a 109 lb lady (and I am 6 ft 7 in 320 lb) she was getting more for pain than I, so you really do have to be your own advocate, I was at the mercy of those nurses who refused to hear that I needed more pain killers. From the very beginning the left knee felt foreign and remains so 7 mos later. It is a far superior knee(to what I had) and is able to walk 20 kms in a single day (I did a part of the West Coast Trail 3 and a half mos after the first operation)Very happy it is there. The second knee felt like it was mine the day after I had it. That operation was far smoother than the first. There was a local instead of the general and this was the beginning of a mucher better experience from the beginning. My Dr learned from my pain problems with the first, and this was virtually painless due to his administration of blockers and pain killers. The whole thing was great. As has been stated earlier, you get out what you put into your pt. This is ongoing for me, and Im a fairly young motivated guy. So if you are going in for this surgery, be wary of all this. The replacement knees are not in constant pain but they are inferior as far as mobility goes. I still cant lift one leg sideways to put on a sock, or any other trivial reason, toe pedicure,…etc. Also the inability to kneel was not something that was not mentioned in the info and blogs I had looked at before taking this surgery. It wouldnt have stopped me but it was a surprize. I am still going for a few more massages and physio because Im having a harder time getting this knee to bend past 110. All in all, I think if you have sensitive and intelligent surgeon(yes I said senitive first cause its real important to have someone listen.There are far too many surgeons with the God complex and dont listen at all)then this can improve your quality of life by a long shot. I am happy with the performance of these knees and hope to get a good twenty years out of them.

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Rick

December 14th, 2008 at 1:34 am

I am 49 yrs old, had right tka on October 1, 9 1/2 weeks ago. My implant is a Zimmer Natural Knee II. I was given an epidural and a femoral nerve block for the surgery. I was in the hospital for 5 days. While painful, what really bothered me for the first week or two was the feeling of helplessness. For the first week I questioned (as I’m sure many others have) if I had made the right decision in having my knee replaced. There was a communication issue with the staff on my first day post op re: pain meds. I was on a morphine pump, which I would pump, fall asleep and then awaken in pain, pump, sleep, wake up. I had a great nurse who said that I should have also had a “baseline” pain med so that I wouldn’t wake up everytime the morphine wore off, so, he’d come by regularly and pump the morphine for me. Good nurse. The only other issue in the hospital was the “student nurse” who stated that she’d never removed a catheter but asked if she could remove mine. Apparantly she didn’t know to deflate it first. Yikes. Since I’m fairly young, my Dr. chose to install a larger polyethylene spacer, presumably to last longer. Unfortunately, this caused some difficulty in getting my foot flat on the ground when walking for a couple of weeks. Understand that walking stiff legged for many, many years causes ligaments to get very tight. That said, physical therapy is critical! I had in home therapy for two weeks followed by out patient therapy. I have been blessed with very good therapists. Manual manipulation of the scar is important to prevent scar tissue formation as is frequent stretching. One thing not mentioned much is that many surgeons prescribe Lovenox injections (blood thinner) for two weeks post op. Doesn’t really hurt, but I couldn’t bring myself to give the injections. Fortunately my wife did those for me. My Dr. and his staff have been awesome. He always says “Don’t be stoic, take your pain meds” and has me on relafin for inflammation too. Range of motion is good and knee is better every day. Would I do it again? Probably.

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Cindy

January 1st, 2009 at 7:47 pm

I’m sorry to hear so many difficult stories. I am now exactly 5 weeks post-op from a left knee replacement and am 49 years old. I had my replacement done through the Hip and Knee Institute at Concordia Hospital in Winnipeg. The pre-op care was fantastic – I was given a binder of information, including all the potential difficulties prior to having the surgery. I was in 6 days, including surgery day and received phenomenal pain management (that does not mean that I did not experience pain, but the staff were directed by the surgeons and the acute pain team to manage it as best they could). I have a lot of aching of the muscles and that is difficult – I too, hate to ask for more pain medication and I am almost out. In the hospital, after the 2nd day when drain and leg massagers were removed, I used a cryo-cuff, which circulated ice cold water around the knee and could be left on 24 hrs per day. I also used this throughout the night at home for the first 2 weeks and this helped a lot with pain and swelling. The worst part of my day seems to be 4 in the afternoon and 4 in the morning. I received a Genesis II Oxinium knee joint, which has a ceramic coating, I believe. I highly recommend asking lots of questions about pain management because I have heard horror stories. I can’t imagine going home without proper pain medication. With the right doctor and the right pain management team and rehab department, I highly recommend this surgery. It does require patience and hard work and I still have a lot of swelling, some numbness and a small hematoma that I’m hoping will go away without requiring surgery.

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Charleen Haugen

January 1st, 2009 at 11:14 pm

I had thr (right hip) on March 17, 2008 and then tkr (left hip) on July 7, 2008. The hip was a piece of cake. I had been experienced terrible back pain prior to my surgery and had an MRI to discover what if anything was casing the pain. What was found was sever degeneration in the hip. Following the surgery I woke up with no pain! The hardest thing about having thr was being so helpless at first because you are limited by what you can do due to the hip being non-cemented. Laying only on my back was very difficult as I had always slept on my side. I became depressed by about 3 weeks but starting PT at 4 weeks helped. By three months I was walking about 3 miles a day. I do watch how far I bend and sometimes putting on my sock is still a little difficult, but I am able to do almost anything including sleeping on the hip, laying on a carpeted floor on that side, and most exercises.
Tkr is a different story. I was walking the halls in the hospital the day after surgery with hardly any pain. I enthusiastically started pt a week later and found due to pt following my hip, the exercises were easy and I had good strength but range of motion exercises was another thing. They were grueling and painful. Pt was able to get me up to 115 with much work but on my own I am only about 95 even now. I constantly work at range of motion and I am almost six months from tkr. I ride a stationary bike daily, rocking in a rocking chair is a must, I also swim and do various pool rehab. I live in a split level home with many stair to climb and find going is easy but going down with both feet is difficult and painful. One thing I discovered following my surgery was that I had varicose veins. These cause most of my problems along with swelling of the knee. If I had to do the surgery again right now I wouldn’t. If I had known my varicose veins were such a problem, I would have had them taken care of first. I also find laying on my back and bending my knee while laying is painful. I experience stiffness most of the time and always work to limber the knee. I sleep with a pillow to prop my leg at night. There are many things I can do now that were difficult before, such as kneel. I do find that I am better than I was before my hip surgery but not better than I was before my tkr. I will say, at this point, if I had known that the knee was going to be so difficult, I would not have done it.

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Mary

January 12th, 2009 at 8:35 am

It is now 1 year post-op Bilateral total knees.

I have to say that I still feel stiffness going down the stairs but other than that all is well. Some hanstring stiffness but , I walk 3 miles at least 3 times/week usually more . Do everything I want to do but kneeling . That is painful , so I don’t do it .
Can’t imagine what I would be doing now if I had not had the surgery .
One thing for sure , my family isn’t hearing me complaining any more ! It was definitely worth it !

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Joyce Aurich

March 11th, 2009 at 10:09 pm

I am only three weeks post op..feels like the operative knee is longer that the other leg..so now i have serious back problems from limping. Operative knee is stiff and do bending like it should.. i have been doing my exercises. now need to go to outopatient PT.

sure hope i haven’t traded the pain of bad knees for back and. knee pain

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bonnie

March 17th, 2009 at 6:21 pm

I had my knee replacement 02/08 and am still experiencing a lot of pain and discomfort. In the hospital, I felt pretty good, was up and walking with very little pain. PT was rough and they did have to go in after 5 weeks and do a manipulation. After having x-rays and a bone scan, they can’t seem to figure out why I am still hurting. I am unable to do any of the “fun” things I used to enjoy, like shopping, antique hunting, playing with my grandson, even going to the movies is uncomfortable. I constantly have to get up and move around and can’t stand on lines to shop. The only suggestion the doctor has at this point is to just live with the pain and try to go back to work. If I can’t sit through a movie or drive longer than a half hour, how am I supposed to return to work? I read a blog on possible allergies, anybody have any information?

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June

April 3rd, 2009 at 6:08 pm

It’s been five weeks since my knee replacement. I thought going into this it would be a breeze. I’m 45 in fairly good shape, active, outgoing, and healthy. Today I’ve been placed on bed rest for the next five days. It is really crucial to not over do it. For me, I tried to resume my normal lifestyle: shopping, exercising, walking, stair climbing…slow down is what I’ve been warned. I’m not going to lie. The pain is incredible! I wish I would have read what to expect following post-op. I look forward to the day when I can walk again and sit for longer than 10 minutes without pain.

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Mary

April 30th, 2009 at 9:32 am

Hi June – you sound just like me! My surgery was 2/24 and I still have pain on a daily basis – still taking pain pills – trying really hard to walk up and down steps like a normal person but it is really had – still doing exercises every day – after working all day not much I do when I go home – I can find nothing that makes me not have pain. I too am looking forward to the day I can say I’m glad I had this done. I’m 45 too. At this point in time I would never have the other one done. Lots of people say it was the best thing they could have done – I’m waiting to say that and hope I can say it soon!!

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johnjohn

May 25th, 2009 at 1:29 am

I had a TKR over 5 years ago and it has never worked i was 45 the doctors that I have went and seen say the bottom bone was put on 32degrees sideways and knee cap too low and the main tendion was cut too short so all i can bend the knee 65 degrees and it always hurts no matter what way i hold it! I was wondering if anyone else has had this problem. Also the doctors all say nothing can be done with it that includes making it stiff or amputation.They say the phanton pain would be too much to bear. I have seen 5 other surgeonsI would like to have some input in this. thank you

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judie

May 31st, 2009 at 7:36 pm

It will be two years next month since I have had a tkr on my rt knee. I have two previous blogs on here and I would like to give an update as my previous ones were not very positive. I have made a lot of improvement in the past year. I still have pain occassionally but not nearly as often as I had experienced the first 18 months. I also am able to bend my knee a lot better and get up from a sitting position a lot better. I think exercising in the water helps a lot. Also, even though the Dr. told me I would not get much more flexibility out of it after a year, I am proof that time and just plain keeping on doing whatever you possibly can, will help. I finally feel like I can start exercising a lot more and get my weight down and know that will help my other knee also. I still don’t want to have that one done yet though.

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Marcela

June 7th, 2009 at 2:46 am

I had a total left knee replacement done on July 16,2007 I was only 48 years old but had no cartiladge and was in alot of pain so I had to have my surgery done hoping to have some kind of relief from all the pain. Well two years later I still have major pain. I was told before going into surgery that I would come out of recovery with a drainage on my leg and with my leg in the range of motion machine. Well I came thru my surgery and was brought into my room with NO drainage and No machine on my leg. I was on major pain meds which I’m thankful for but my surgents carelessness has messed me up for life. I was in the hospital for FIVE days, was sent home on a Sunday morning and Monday morning when the nurse came out to the house to check on me I had spent the night in major pain and when he asked me to stand up and try to walk using my walker, I was unable to cause of the severe pain in my calf and the nurse said it could be blood clots so she called an ambulance and I was rushed back in with an ifection and and was back in surgery the following Thursday. So as you can see do to doctors carelessness we end up paying for it in the end.
Now nearly two years later, I still can’t go up and down steps without major pain cause my knee hardly bends. I still can’t sit or stand for long periods of time cause of the pain, I can’t walk the mall like I used to, I can’t ride a bike cause of my range of motion not being good at all, I definitely can not kneel, and I have constant pain in my calf alog with constant swelling.
I know I needed to have my surgery cuase my knee was in so much pain and was constantly giving out on me, but had I known I would still be hurting and wish limited used of my leg, I would have done more research as far as surgents go.
My right knee also needs replaced and I have tons of pain with it and it gives out on me when I least expect it, but after what I’ve gone thru with my left knee I am putting off my right knee for as long as I possibly can.
Anyone out there going thru what I’m going thru after two years please let me know.
Oh, and as for the blood thinner shots they want you to use before your surgery, I would be very careful If I were you. Cause of the use of the blood thinners when they took my back into surgery to take care of my infection, I bled profusely and they had a hard time controlling my bleeding.

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Sally

June 9th, 2009 at 9:54 pm

Well, I’m scheduled for TKR on my right knee on 6/24 but I don’t know what to think now. There’s a lot of negative things to be said about it and I want the pain fixed not made worse!

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Mary

August 17th, 2009 at 2:21 pm

It is now 1 year and 7 mos. post op BTKR.

I’m reading the posts and hoping that everyone will keep exercising , stretching and trying to be positive .
I am going to be 72 in Oct. and am so happy to be enjoying life without the problems of ” bad knees “.
It’s worth it !!!!!!

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Mary

September 21st, 2009 at 9:16 am

Reading posts again .
I am so sorry that so many of you have had bad experiences.
My only thought is that choosing a reputable physician , who has good credentials , is so important .
I am fortunate to live between Washington DC and Baltimore , Md with fabulous orthopedic physicians .
I chose the Dr and am grateful to have had the ability to choose. I’m praying that everyone has that freedom to choose, as this country debates health care .
Knee surgery is very difficult , but with proper preparation , capable physician and hospital , your outcome should be good.

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marilyn

December 21st, 2009 at 8:59 pm

I have had 5  procedures, 4 surgical, on the same knee in 3 and 1/2 years.  The arthroscopic surgery for miniscus repair in May of '06 was not successful in that by March of '07 I had a TKR.  This was not successful: great pain, narcotics, a manipulation in July, 07, more pain, swelling, narcotics.  By May of 2008 I was told that the cement had separated from the apparatus and I would need a "revision"…a polite word for a "do-over".  This time it was a huge success, and after 6-9 months I no longer gave a second thought to my  knee.  Much acupuncture, dance and water aerobics and yoga made the knee totally comfortable.

Well!  3 weeks ago the knee buckled, the squeeked then started locking daily, sometimes in the process of going down steps.  I nearly went head first on several occasions.  I went to my surgeon and the digital x-ray he took showed that a screw had become more than 50% loose!  2 days later I had surgery yet again. Nearly total reopening of the 8" scar. "Luckily" for me, (hah!) the screw was not good but the hole it went into maintained its integrity and I avoided another TKR.  It doesn't mitigate the pain, risk of general anesthesia, down time from work, paid and PT all over again!

I trust my surgeon implicitly and he said it would not happen again.  What are my assurances…THIS was never supposed to happen.  In  his 15 years of being a top notch surgeon he had never seen this.
Can anyone speak to this?
 

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Mary

January 12th, 2010 at 4:34 pm

Jan 12 , 20010
My 2 year anniversary  was Jan 8. I don't even feel like I have ever had surgery . My knees are wonderful . Good flexibility and I can walk as much as I like .   Hopefully , my outcome is usual for most people . I am grateful .

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Ginger

February 28th, 2010 at 1:41 pm

I was operated on November 23rd, 2009, had a renowned surgeon, stayed five days in hospital, went directly to a nursing home for rehab, did PT 2x daily in the nusing home. Pt hurt me very little, and they said I was a wonderful patient. I was so good I never even took the Vicodin pain pills which I have at least 60 of. I was up to 120 range of motion three weeks after operation. Everything was going so wonderfully I was surprised and very grateful. Then one day about three weeks ago after coming home from PT, I was walking up the stairs into my home when I involuntarily let out a yelp that could be heard from here to China. I was never in so much pain in my life and was crying and yelping so loud I thought my neighbors would think I was being robbed or worse and woud call the police. I called my doctor and he told me to ice it continually for 20 minutes each time about three times daily. I did and it helped enough that I wasn’t yelping, but was still in one heck of a lot of pain. I take Vicodin about twice daily to ameliorate the pain, and am still feeling pain in the back of my leg and down around the front near the ankle. The knee hurts on either side too. My doctor seems pretty calm about all this and tells me it should go away soon. The icing helps some, but not much and I have an appt. with my surgeon next Friday. From the sounds of all this info on this blog, I wonder what he will say and whether all this misery will go away. I am now in about as much pain as I was when I first came out of the hospital and into the nursing home. I am right back at the beginning. I can’t even do PT because I can’t put any weight on my leg. What gives?

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