I received this question today:
I’m the Living with Diabetes blogger…
and something has come up on the insulin pumpers list, that needs to be commented on by a medical doctor, especially one like you who teaches other medical doctors.
Several people on the list are amazed, dumbfounded, etc. that both family care physicians and endo’s tend to treat diabetes fairly cavalierly.
For example, many endos won’t prescribe the pump, saying that shots are good enough. Of course the HMO’s LOVE that attitude, I’m covered by one of those HMO’s myself. However, those of us who have been on both shots and the pump can tell you that we feel better, have better control, and have better lives as a result.
We’re also dumbfounded by the doctors who treat Type 2′s by giving them pills, suggesting a life style change, and suggesting that they test once a day. In fact, I’ve had two sets of CDE’s that thought testing twice a day was good enough. Lots of us know people who are treated that way and who are also suffering a great deal with diabetes complications, that could be avoided if they were treated right.
Why do doctor’s have their attitudes? How can this be changed? It seems we’re only covering the tip of the iceberg with the so-called diabetes epidemic.
Well I cannot speak for all physicians. Therefore my rant will only provide opinions and controversy. Nonetheless, that has never slowed me down in the past, so here goes!
Diabetes (especially type II) provides a special challenge for physicians. The disease is extremely common, yet very difficult to treat well. Excellent treatment requires a motivated patient and a motivated physician.
Many physicians find few motivated patients. We plead with patients to achieve excellent control. We would like them to test their sugar regularly.
As I have blogged previously, quality diabetes care requires that one touch all the FLECKS. (Feet, Lipids, Eyes, Control, Kidneys and Shots). Diabetic patients have many issues to address. Our reimbursement system penalizes us for spending adequate time with patients. Let me repeat that sentence (it is not a mistake). Our reimbursement system penalizes us for spending adequate time with patients. Doing the right thing takes time. And time is money.
Many physicians try hard. They encourage patients to develop tight control. Yet most patients show little interest.
One would hope that patients could find a physician who matches their desires. We must accept the blame, even when we can explain why. Providing quality care is difficult. Yet it should always be our goal.
I apologize for talking around the question. However, I do not think the question is directly answerable. Most physicians just have no pump experience, therefore, they use the tools with which they are experienced. But again that represents and insufficient excuse. We should refer motivated patients to the appropriate experts.
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{ 6 comments }
Thanks for the fast reply. I sent a message to the insulin-pumper’s list and hopefully some of them will come too.
It seems in a way, we have a Catch 22 situation. If doctor’s don’t have time to motivate the patient, how do the patients get motivated?
In my case, I saw first hand what happens if you ignore diabetes. Yeah, that was 20 years ago, and there wasn’t anyway NOT to ignore diabetes, but I learned all the same.
I know lots of people who assume that I have diabetes worse than they do because I went to insulin every quickly — however, I could see the pill game was going no where fast, and that insulin had fewer side effects. I’ve never seen a happier doctor than mine when I suggested insulin.
Why don’t they suggest it?
In fact, I really wish the pump had been suggested to me sooner. Like the day I asked about insulin. It is much more convenient than shots when it comes to overall life style issues. (Okay, carrying around 5 pounds of just in case supplies is not convenient).
Why is the pump the option of last resort, rather than the option of first resort?
Could this be yet another pharmacutical issue? Is it because the drug companies have the market cornered on insulin mixes? The mixes are QUITE expensive, and the pump companies don’t have the resources to compete.
I recently received a package from the folks that make Novolog insulin and the pump was barely mentioned. However, several pages were devoted to how wonder their insulin mix was.
Now I am starting to think like a conspiracy theorist
I’m another of the “pumpers”. For me, the question is more of “Why aren’t doctors taught to LISTEN to their patients?!”
While many patients may not be motivated to participate in a very high level of self-care in the same way that I am, it seems that a communication gap may be causing many of the problems experienced by both motivated and unmotivated patients.
On the one hand, we have motivated patients, such as myself and the other members of the “Insulin Pumper” community, and these patients are often told that the level of care they wish to provide for themselves is unnecessary, paranoid, or worst, “WRONG”.
At the same time, there are doctors who push unmotivated patients towards programs which require large amounts of participation on the part of the patient and their families. Many of these patients end up feeling frustrated, confused, and as if they have no possible way to control their condition (making them unlikely to ever change their position regarding tight control).
Is it that difficult to gauge a patient’s willingness to participate and involve themselves in their own care? Is that something which can be taught? How could doctors tailor their approach to INDIVIDUAL patients, in order to better serve them in the long run?
The questions posed are why are some doctors and patients motivated and why are some negligent?
The simple answer: Human nature being what it is, every doctor and patient is different and motivations and interests vary, as in all walks of life. Research shows, if I recall corretly, that about 37% of patients are empowered and self-motivated to have a say in their care. A much larger percentage depend on their physicians to make all the decisions and tell them what to do.
We employers and co-workers know that some people are self-starters and obey orders, and some are unable to think creatively or strategically or be organized or systematic, and they stumble through life. Why would they be any different when it came to their health care? Bad habits are hard to break, ask any smoker, substance abuser, whoever.
Physicians, believe it or not, are human. By definition they’re more motivated than the average person, because you have to be to get into and through medical school and residencies. But they have their interests, and diabetes isn’t always their primary interest. They may be more interested in their incomes, families, churches, hospital politics or special projects. And they act accordingly.
A physician friend and I were chatting at a party recently about changing physician’s prescribing patterns. And she strongly believes 90% of physicians are set in their ways are aren’t about to learn new prescribing patterns or consider alternatives to how they practice medicine. I have a bit more faith in the creativity of most physicians and hope, if not believe, that given better information, many will try to make better decisions.
But as Medpundit explained about her encounter with a diabetes patient the other day, some are more interested in the next meal than about taking good care of themselves. This discourages physicians and it’s understandable that they give up after awhile.
What’s the answer? Patients have to educate their physicians and make them aware of their expectations. And they have to be willing to shop physicians until they find docs whose styles fit their own. It’s important, I think, for the diabetese patients in a community to exchange notes and identify the docs who like to work with empowered and motivated patients and those who don’t. Play reporter. Call a bunch of people, including primary care docs. Ask for names and numbers, exchange information, and do what will help you survive and thrive.
Don’t let do-nothing patients or doctors hold you back. There are people who will embrace your determination to take advantage of best practices and make the most of your lives.
I’m not a diabetes patient or physician, but I’ve been a patient for years for other reasons, and I think it’s important to apply experiences in other fields to the business of personal wellness and health care.
Hope this doesn’t look like preaching.
I can’t think of very many Type II patients who would be good candidates for an insulin pump. If insulin resistance is the problem in the first place, and if obesity is the issue (it’s the PRIME issue in Type II), and if people gain weight on insulin (which they do) – why not use something which increases insulin sensitivity instead, and get them to LOSE WEIGHT through diet and exercise? I have several endocrinologists in my group, and to my knowledge none of them has ever recommended a pump for a Type II diabetic.
Hmm, well, I just emailed one of our Endos who says he does, indeed, use insulin pumps in Type II DM. I plan to talk to him and get further info. Still seems counter-intuitive to me though.
(said the dumb primary care doc.)
Insulin Pump prescribing seems like almost a med-school cultural issue. I come from the Boston area, and have been a Type I diabetic for 30+ years. I’ve had to beg and shop for a doctor each time I’ve wanted to go on the pump.
I have a friend in L.A. He was diagnosed with Type I diabetes at the age of 35, a few years ago. His doctor, a part of the big Kaiser Permanente Group, started him on an Imsulin Pump immediately.
Being in suburban Boston, I have the luxury of having a Joslin Clinic-trained Endocrinologist as my Primary Care Physician, and a Diabetes Educator who is also on an Insulin Pump. However, as said in previous posts, its the match between the motivation of the MD and the patient that matters mosts.
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